Keep the oncology instructions close
The proposed starting point is a parent or guardian keeping authorized instructions and questions together. The oncology team remains the source for treatment and symptom instructions.
When your child has cancer
Oncology instructions. A school pickup. Both need attention this afternoon.
There are instructions to take in, a child who needs you and practical questions waiting outside the clinic: work, the next trip, perhaps another child’s school day. A family can need help with the coordination without needing another person to tell them how to feel.
See a situation-specific handoff ↓For parents and guardians, and the organizations supporting them.
You can want practical help and still want to protect family time, privacy and the ordinary parts of your child’s day. Support should take a piece of the coordination—not require you to explain the whole situation again.
Explore the proposed support ↓How we could help — subject to validation
Explore a smaller, clearer handoff around the care.
Make a practical offer specific
A ride or school pickup can have a named adult handling it, without assuming that person needs the child’s medical information.
Discuss fit before bringing records
Talk with us about your circumstances first. Pediatric permissions, adolescent privacy, source connections and clinical behavior still need validation for this offering.
Talk with us about your family’s needs →
Let’s discuss fit before sharing records.
Illustrative handoff · Invented people and excerpts
A clinic question and a school pickup are different responsibilities.
Invented parent-held clinic question
I want to confirm which preparation sheet applies to the next oncology visit. I will call the clinic using the contact they provided.
Invented household coordination note
Aunt Maya will collect the sibling from school. This does not require access to the child’s oncology records.
- Parent-held source instructions for the oncology visit
- A question to confirm directly with the oncology team
- A separate practical responsibility for an adult helper
What becomes clearer
The clinical question stays with the parent and oncology team. The practical offer becomes one specific job, with no automatic medical-record access.
This is a proposed coordination example, not a live pediatric workflow. A conversation about fit comes before any child’s record, invitation or account setup.
An explanatory example, not a generated record or treatment instruction.
Before you begin
A few good questions.
Can I start uploading my child’s records here?
No. This private concept collects no records or health details. Contact us without sending health information so we can first discuss whether the current product fits your situation.
Will Dekona answer urgent oncology questions?
This concept does not provide pediatric symptom triage, treatment advice or emergency monitoring. Use the oncology team’s instructions and contact route for clinical questions.
Who can see care information?
A referral or family relationship does not grant record access. Record connections and invitations require appropriate authority and scoped permission. Dekona does not contact doctors or pharmacies for you and does not replace your clinicians.
Understand fit first.
Pediatric permissions, adolescent privacy, connections and clinical behavior need validation before a pediatric workflow is offered. No records are requested here. Referrals, sponsorship and record access are separate decisions.
Contact links open your email app. Please leave out child health information.
Helpful resources for this situation
NCI: Support for Families—Childhood Cancer ↗NCI: Support for Siblings When a Brother or Sister Has Cancer ↗HHS: Personal Representatives and Minors ↗