Keep the multidisciplinary visit together
Bring authorized clinic notes from the disciplines involved into the same care space, rather than rebuilding the day from separate messages.
Coordinating care with ALS
After the ALS clinic day, the coordination comes home with you.
One ALS clinic visit can hold conversations about breathing, nutrition, movement and communication. Back home, those conversations can become several notes, an equipment request and calls that still need making—alongside the care you are already giving.
See a situation-specific handoff ↓For a parent, spouse or sibling, or your own care. Inviting someone to the Care Circle is free.
There may be little spare time to reconstruct the clinic day. Keeping its notes and practical follow-ups together can reduce the retelling while leaving the important choices with the person and their team.
See where Dekona can help ↓Where Dekona can help
Keep the clinic day connected after you get home.
Make the equipment follow-up a named task
Keep the clinic request and responsibility for the supplier call close together. Approval and delivery still need separate confirmation from the relevant people.
Bring the person’s questions into the next conversation
Keep the communication or equipment question alongside the relevant note. The ALS team and person receiving care decide what is appropriate.
Start with a clinic document →
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Illustrative handoff · Invented people and excerpts
The clinic requested communication equipment. Jo is following the paperwork.
Invented ALS clinic coordination note
The communication clinic discussed a device and asked Avery to contact the equipment supplier.
Invented supplier follow-up task
The supplier asked for a clinic letter. Jo will ask the clinic how to obtain the authorized copy. Approval and delivery remain unconfirmed.
- The clinic’s request to contact the equipment supplier
- The paperwork question Jo is following up
- Approval and delivery explicitly still unconfirmed
What becomes clearer
The clinic request, supplier question and person making the call are visible together. Request, approval and delivery remain different states.
Jo can ask the supplier what is missing and update the coordination task. Avery and the ALS team decide what equipment is appropriate. A request or completed call does not establish approval or delivery.
An explanatory example, not a generated record or treatment instruction.
Before you begin
A few good questions.
Does Dekona arrange or approve equipment?
No. Suppliers, payers and clinicians handle those decisions. Dekona helps organize the papers and coordination questions.
Is this an ALS treatment tool?
No. It supports care information and coordination; the specialist team directs treatment.
Who can see care information?
A referral or family relationship does not grant record access. Record connections and invitations require appropriate authority and scoped permission. Dekona does not contact doctors or pharmacies for you and does not replace your clinicians.
Helpful resources for this situation
ALS Association: Multidisciplinary Centers and Clinics ↗ALS Association: Independence and Mobility ↗Caring for a Loved One with ALS: A Family Guide to Staying Ahead of a Fast-Moving Disease (2026) →What to Bring to the ER for Someone You Care For: The Emergency Packet Every Caregiver Needs (2026) →How to Find and Vet In-Home Care for a Parent or Loved One (2026) →